Family and friends,
To get you up to speed….over the past 4 weeks we have been trying to identify and address the issue of Bubba’s ‘wobbly’ walking…since I am such a patient person (stop laughing) we’ve been on a whirlwind of me pushing to get pt started, MRI’s scheduled and in with a neurologist….
First off a BIG Thank you to all who have said prayers and sent positive thoughts our way since day one with our little guy. While I’m not ready to have any major conversation – I am ok writing. I am still trying to process some stuff and read some stuff to understand some of the big words used.
Today was the visit with the neuro doc…
Let me first say that the neurologist, Dr. Amy Harper, is amazing. She was gentle and soft spoken. AND she carries a bag with her full of attention getters (toys) like it’s a dang barney bag. We are very fortunate to now have her “on his team”.
The mri showed damage to the white brain matter from the grade 3 brain bleed that you might recall he had when he was born….the technical name is “chronic periventricular leukomalacia and his is more prominent posteriorly”. (When the swelling in his occipital horns occurred, it put pressure on the white brain matter around the horns, thereby damaging the area). It is very common in babies born under 32 weeks (remember, he was 28 weeks 3 days).
So what does that mean for Bubba – nothing really different that the path we were already on….PHYSICAL THERAPY. PHYSICAL THERAPY. PHYSICAL THERAPY.
We go back to Dr. Harper in 6 months for her to see how the pt is progressing. She said that fine motor and speech are a-ok and she said the issue is gross motor skills, and even that is MILD MILD (she said it twice). Dr Harper was very impressed by his vocabulary and he told her “thank you very much” as we were leaving.
For us? It means we need to pay closer attention to when and what he is doing as far as meeting mile stones….in other words pretend he is the 1st babe instead of 4th and write everything down! (talk about a challenge for me). Obviously, we will be diligently working with him on the pt side….
So, that’s where we are – another little curve ball – but that’s what he’s been about since the day he arrived. He likes to do things in his own little way…..
Again, thank you for all your thoughts and prayers. Family and friends continue to be such a support to us all and we are so fortunate to have you.