Wednesday, September 16, 2009

A Father's Song

My cousin, HollyBeth, has a girl friend named Robyn. Robyn has a precious little daughter named Ava Layne Crow. (Ava means "like a bird" in Latin...her last name is crow, how cute is that? I remember when Robyn was pregnant with Ava and talking about the name and how neat it would look on horse stuff, tack boxes and the like. They are horsey people like HollyBeth.)

Ava has Cystic Fibrosis.

Cystic fibrosis (CF) is a life-threatening disorder that causes severe lung damage and nutritional deficiencies.
An inherited condition, cystic fibrosis affects the cells that produce mucus, sweat, saliva and digestive juices. Normally, these secretions are thin and slippery, but in cystic fibrosis, a defective gene causes them to become thick and sticky. Instead of acting as a lubricant, the secretions plug up tubes, ducts and passageways, especially in the pancreas and lungs.
Respiratory failure is the most dangerous consequence of cystic fibrosis. Also, the secretions block pancreatic enzymes that help digest fats and proteins, and they prevent your body from absorbing key vitamins. (

Ava's daddy wrote and performed a song about his sweet little girl, the song is called Trail of Hope.

Please watch Ava's video. You can click on the link or copy and paste....

It is the sweetest thing.

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